Can I tell you about Nystagmus?: A guide for friends, family and professionals
No. of pages 80
Published: 2019
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This book is part of a book series called Can I Tell You About? .
This book has been graded for interest at 7-18 years.
There are 80 pages in this book. This book was published in 2019 by Jessica Kingsley Publishers .
Nadine Neckles is a special needs blogger who has written for leading disability charities including Carers UK, Caring in the Chaos and Firefly. Nadine is a full-time carer to her young daughter who has nystagmus and Chromosome 18q-, a rare genetic condition.
This book has the following chapters: 1. Introduction for parents, carers and professionals; 2. Introduction to Nystagmus; 3. Introduction to Amber - Introducing Amber who has Nystagmus; 4. Diagnosis; 5. Wearing glasses; 6. School and Nystagmus; 7. Making friends and playing - Avoiding bullying; 8. Playing; 9. Sensory; 10. Things that affect my Nystagmus; 11. When I grow up - Adults living successfully with Nystagmus; 12. Treatment for Nystagmus; 13. Associated conditions; Useful checklist for adults; Glossary of terms; Helpful resources, books and websites
This book is in the following series:
The book is useful for all professionals in highlighting a number of ways to help a child with nystagmus. It is written in easy, upbeat language with fun illustrations, that all of us can enjoy. -- J. Margaret (Maggie) Woodhouse OBE, Senior Lecturer and Specialist Optometrist, Cardiff University
'Can I tell you about nystagmus' is an extremely helpful source for both carers of, and people with nystagmus. The user-friendliness of the book aids to understand nystagmus, gives useful tips and shines a positive light on living with the condition. -- Professor Irene Gottlob and Dr Rebecca McLean, University of Leicester, Ulverscroft Eye Unit
Can I tell you about Nystagmus is a welcome addition to the series and highlights a much misunderstood condition. Seen from the family's perspective, the description of the way nystagmus affects the daily life of a young child will be informative and reassuring for other parents. -- Sue Ricketts, Executive Information and Development Manager, Nystagmus Network, registered charity in England and Wales number 803440 www.nystagmusnetwork.org
