With acerbic wit and a hilarious voice, Shane Burcaw describes the challenges he faces as a twenty-one-year- old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humour and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye opening perspective on what it is like to have a life-threatening disease.

 

There are 272 pages in this book. This book was published 2016 by Palgrave USA .

Shane Burcaw is a twenty-one-year-old with spinal muscular atrophy. He is currently a junior at Moravian College in Bethlehem, Pennsylvania, studying English. Shane runs a nonprofit organization dedicated to raising money for muscular dystrophy research.